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134 %
£13,417
raised of £10,000 target
by 140 supporters
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Richard Ednay avatar
Richard Ednay

Richard's Myeloma XII Clinical Trial

I'm on a long term endurance event - my treatment! for Myeloma UK because I want to raise money for this excellent charity

134 %
£13,417
raised of £10,000 target
by 140 supporters
Donate

Myeloma UK

We provide support and fund vital research to make myeloma history

Charity Registration No. SC026116

Story

The story so far…

On February 27th 2014 one of my vertebrae collapsed, whilst I was running a training course away from home, but fortunately in the UK. This led to the subsequent diagnosis of Myeloma as the cause of my weakened bone structure. Myeloma is a form of bone marrow cancer, and in my case it is primarily my bones that have been attacked by the cancer.

I had spinal surgery at the beginning of March 2014 which successfully reconstructed the L5 vertebra , a wedge fracture of T11 vertebra was also operated on in October 2014. I am left with a variety of lesions in my bones with weak points in my ribs, shoulder blades, collar bones etc. So no more active sports for me.

The Myeloma treatment was done under the Myeloma XI clinical trial, with CTD and then VCD chemotherapy, followed by high dose chemo and a transplant of my own stem cells. The picture above is of the stem cell harvest. All successful and then 2.5 years of remission with the aid of Revlimid as a maintenance treatment. 

At the end of 2017 the Myeloma is returning with blood counts that mean I have relapsed. 

At the start of 2018, I'll be enrolled onto the Myeloma XII clinical trial. More chemo, this time with a new drug Ixazomib in the mix with Thalidomide and Dexamethasone. 4-6 x 4-week cycles. Then a second stem cell transplant, meaning another 3-4 week stay in isolation at St. James Hospital in Leeds.  

So, having set this Just Giving page up for my initial Myeloma XI treatment, it is now had an extra 'I' added to make it Myeloma XII. Still open for donations, thanks to everyone for their generous donations that means we've already exceeded the original £10,000 target, but let's keep going...

Richard-Ednay

Photos

10
  • Jemma with Cakes. The Cake Bake event at The History Press raised £136.77. Well done everyone!
  • With a non-alcoholic orange cocktail at the Cross Keys Go ORANGE Charity Auction +8

Supporters

140