Our special godson, Jude Hudson has an extremely rare life-limiting neuro-degenerative condition called Schinzel Giedion Syndrome.  Jude has hearing and visual impairments and a severe developmental delay. He is unable to support himself, has little head control and is not able to swallow effectively. He receives his nutrition through a permanent feeding tube directly into his bowel.  Jude suffers from epilepsy as well as a range of digestive and urology problems.  He is entirely dependent on his family and carers for all of his needs.

Jude needs a downstairs bedroom and bathroom to enable him to be properly cared for at home. His current bedroom and upstairs bathroom do not provide adequate enough space to be able to move and handle Jude safely.  He needs to be able to receive his personal care in a safe and hygienic environment with the proper equipment to enable safe lifting with a hoist and hygienic bathing in an adapted wet room.

Jude’s family have the necessary planning permission now in place to adapt their home to cater for Jude’s needs. We hope that by doing the Yorkshire Three Peaks, we can help to raise the necessary funding to enable our special godson and his dedicated family to have their home adapted to be able to care for his everyday needs.

Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds for vital home adaptations for a disabled child, to continue to care for their child at home, safely and with dignity.