Thanks for reading, I need your help. I'm Ruth, and I'll be involved in sponsored car washing, cake making, and generally doing things for free to raise awareness (will update here).
Harlequin-type ichthyosis is the most severe form of congenital ichthyosis. Swelling to the eyes, ears, and other appendages, mean that the babies born with this skin disease have difficulty seeing, breathing, or even moving.
The texture of the skin means it cannot bend where soft skin usually can, it's cracked texture is agonising and means the babies are prone not only to infection from the bleeding exposed cracks, but from hypothermia also.
Medication such as Isotrex, which improves their quality of life, are essential. But with your help, further treatments can be found, and you will be contributing to the life-time care that Harlequin sufferers require.
Even just £1 would be greatly appreciated. So please, if you can find the time, just a small donation would go a long way.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now, small change can make a big change :)