Hello everyone! I am cycling the 90 mile Cardiff Velothon in aid of the charity "Invest in M.E.". As many of you know my youngest daughter Evie suffers from M.E. following a bout of Glandular Fever. Before M.E. Evie led a full and active lifestyle, she was always playing sport and throwing herself into everything life has to offer. Since becoming ill her health has gradually deteriorated over the past five years and she has now been housebound for the last 18 months. A very good day for Evie is having a shower, or having the energy for someone to wash her hair. Evie's body does not produce enough energy. If you imagine your energy is like a battery charge, each day for a healthy person you would start the day at 100%, whereas Evie would start the day with a 10-20% charge. This results in her barely having enough energy to get through the day. Other symptoms Evie suffers from as a result of M.E. include pain, migraines, brain fog, severe noise and light sensitivity, an inability to regulate body temperature and overwhelming fatigue.
Myalgic Encephalomyelitis (M.E.) is a severe, acquired illness. Despite an estimated 250,000 people suffering from the condition in the UK there is little investment in understanding the cause of this illness. There are clear clinical symptoms which manifest predominantly based on neurological, immunological and endocrinological dysfunction. "Invest in M.E " is active in its support into high quality biomedical research which is the most promising route to finding a cause and treatment for this debilitating illness.
Despite Evie being so ill she somehow manages to keep optimistic and positive.If you want to read more about my daughter's story she writes a blog called Mindfully Evie, the link to her blog is below.
Please support this charity to give hope to Evie and everyone else suffering from M.E. that one day a cure will be found and they will be able to live a life that we all take for granted. Thank you.
Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS).The charity is run by volunteers - patients or parents of children with ME - with no paid staff.Overheads are kept to a minimum and all funds raised to go to promoting education of, and funding for biomedical research into, ME.Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations, diagnosis and in time treatment(s)/cure(s).