Rob was diagnosed with Becker’s Muscular Dystrophy 12 years ago when he was 38 years old.

Rob first went for tests after a series of falls. He was referred to a physiotherapist to try and understand why he was falling, and they sent him for an MRI. After a series of complex tests, doctors confirmed his diagnosis. Becker's Muscular Dystrophy is a recessive inherited disorder characterised by a slow progression of weakening of the muscles over time. The disease can affect the skeletal and heart muscles leading to increasing and often severe disability

For the last 12 years, Rob never let his diagnosis define his life. He was dedicated to his job in the police- having never taken day off sick! But more importantly he was a passionate cook and family man. Despite having to rely on a stick and eventually a wheelchair, we all enjoyed family holidays and adventures to Spain, France & Portugal over
the years.

Always trying to understand and work with his condition, three years ago Rob took part in a pioneering medical trial, to have a state of the art pacemaker and defibrillator placed inside his heart. These devices saved his life on a number of occasions. 

Over Christmas Rob was admitted to hospital with worsening heart failure. After a week of trialling different medications, we were told that sadly the heart failure was too far along and there was nothing
more doctors could do. Rob was transferred to a wonderful hospice at the beginning of year  and sadly died on Wednesday 8^th January 2020,
surrounded by his close family. Thank you to the amazing staff at Wakefield hospice who helped make his final few days so peaceful. He was just 50 years old.  

We have decided to raise money for Muscular Dystrophy UK. This
amazing charity is the UK's leading research led organisation that brings together more than 60 rare progressive muscle-weakening and wasting conditions. They support the 70,000 people living with these conditions in the UK. Your donations could help fund ground-breaking research as well as support families like us.

• £5 per month could fund a care team to support a family for a week.
• £15 per month could fund an hour of research
• £20 per month could help fund PhD students, and build the future for neuromuscular research

With this, we hope that as much research as possible goes towards better understanding this devastating, life limiting disease. Thank you for all the love and support.

Sharon, Ben, Adam & Jamie xx