Hello Friends and Family!

We need your help!

Last year our gorgeous grandson/nephew Jamie was born in Canada 🇨🇦.

Jamie loves apple sauce, his dog Nessie and he loves Lewis Capaldi (Must be his Scottish blood!). Jamie also has cystic fibrosis.

CF is a rare genetic condition and we had no idea it was in our family. 1 in 25 people are carriers of this gene, and if you and your partner are carriers, there is a 1 in 4 chance your child will have this condition.

If you don’t know much about CF, you can read about it here:

https://www.cysticfibrosis.ca/about-cf

https://youtu.be/z0rxydSolwU - Famous song about CF.

As you can imagine, we were all very worried last year when Jamie was born about how his future would be. The COVID-19 pandemic certainly hasn't helped and we have been unable to go to Canada to meet our precious Jamie and see our son/brother and Canadian family.

At a few days old, Jamie needed emergency life-saving surgery and now, like everyone with CF, he needs to take medication and complete physiotherapy chest clearance exercises every day so he can eat and breathe properly.

Thankfully, our Jamie is doing really well and he is a bright and happy wee boy! We love him to bits and although we haven’t met him in person yet, he has a huge place in our hearts.

In the months following Jamie’s birth an amazing drug, Trikafta, became available. This drug is life changing, and now means that Jamie and others living with CF will have a chance of a better future, better quality of life AND their life expectancy has significantly increased and expected to be just the same as everyone else! This is truly amazing and all down to research funded through CF charities.

It doesn’t stop there however. Researchers are getting closer to finding a CURE for CF!

However, to do this, there needs to be further research and funding. We want a cure to CF and we want our Jamie to live life to its fullest. This is why we are fundraising for the Cystic Fibrosis Trust UK who funds this life changing research to benefit those around the world with CF. So whilst our boy lives in Canada, the research funded by CF Trust UK will be of benefit to him and others living with cystic fibrosis.

We are asking you to please sponsor us with our events/challenges and to help us raise money for CF Canada so that: 

1) Life changing medications can continue to be found and developed that will benefit our Jamie and 2) So future research into a cure for CF can continue.

Grandad Ken is up first with his 10km a day in August challenge. Ken plans to cover 10km per day through walking the dogs and patrolling the school corridors to cover 310km in August !

Auntie George and Granny Jeanie are swimming 3km in open water on the 21st of August in the freezing Loch Tay. Neoprene suits and swim caps at the ready !

Auntie Frizz (Isobel) is going to attempt her first middle-distance triathlon the 22nd of August which involves swimming 1.2 miles in Loch Tay, cycling 56 miles and then running 13.1 miles at the end (a half marathon!).

Sore legs pending for all!

We have fully funded taking part in these events, so 100% of your donation will go towards the Cystic Fibrosis Trust.

If the events that Jeanie, Isobel and Georgina have signed up for are cancelled due to covid-19, they will complete the challenges locally.

Please sponsor us if you can and help us fight for our wee Jamie and others living with CF.

Thank you so much for reading this and supporting our Scottish-Canadian family 💙🇨🇦󐁴󐁿