I only hope one day whenever it may be someone out there can maybe find a way to cure or even make this disease less cruel than what it is! My Mum has taught me ALOT but the most important thing was how she managed to be so dignified, brave, smiley and never complained about what suffering she was going through.

This Charity is unrecognised and needs ALL the help it can get, it affects not only the person having to live with this disease but also their entire families, so please, please, please donate, a pound, £10, £20, £50, £100 what ever it is doesn't matter, it ALL helps and will be truly appreciated!!! Xxx