Ronald Bentley

Ronald's London Marathon 2022

Fundraising for Huntington's Disease Association
£21,735
raised of £20,000 target
Donations cannot currently be made to this page
Event: London Marathon 2022, on 2 October 2022
Join #TeamHDA and take part in the most iconic race in the world, the TCS London Marathon 2022. With your help we can support the thousands of people who are living with HD today.

Story

Having run two marathons before (Paris and Nice-Cannes) it seemed a good way to raise money for the HDA, who are providing valuable support to my family afflicted by the disease. Early training, as on the Strava feeds, make me question the wisdom of this idea at 67 years of age.

French marathons have not got the charity bug like London so London it is. Georgia is hosting this fundraising site as the UK resident and tax payer.

David Leigh, my brother in law, was diagnosed in January 2021, and Fiona's diagnosis followed in April '21.

Our children, Georgia and Frederic, have therefore a 50% chance of inheriting it from Fiona. Luckily her older brother Robin is clear saving his children and grandchildren from any risk.

Both Fiona and David have early symptoms; this has meant stopping work (the Chambres d'hôte for Fiona).Fiona is being followed up by our local specialist centre at CHU Lille, and has started on a development drug trial Branaplam Vibrant-HD in May 2022. She benefits greatly from talking as needed to an HDA counsellor in the North West of England.

David and Georgia are covered by the UK centre in Birmingham, with Freddie by Exeter.  David is also participating in a different development drug trial there so let's hope one of them succeeds.

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About the campaign

Join #TeamHDA and take part in the most iconic race in the world, the TCS London Marathon 2022. With your help we can support the thousands of people who are living with HD today.

About the charity

Huntington's Disease Association

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RCN 296453
Huntington's Disease Association England and Wales exists to support anyone who is affected by Huntington's disease. It pursues the best possible care; provides training and advice to families and professionals; raises awareness, and promotes research towards better treatment and care.

Donation summary

Total raised
£21,734.34
+ £1,278.75 Gift Aid
Online donations
£11,284.34
Offline donations
£10,450.00

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