Rory's Run
Justin Stott is raising money for Bliss
In memory of Rory Stott
Story
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Conor and Rory Stott were born at 25 weeks gestation on 29th September 2012 at The Royal Oldham Hospital. They were cared for by Us both, our family & by the staff at TROH Neonatal Unit. Rory lived for 129 days thanks to the work and research that the unit undertakes, and for the support & research given from Bliss.
We are running the London Marathon in memory of my gorgeous son Rory, Conor & Harry's brother and to raise money for Bliss,
They champion the right for every baby born premature or sick to receive the best care by:
Supporting parents of babies born premature or sick to be as involved as possible in care and decision-making for their babies.Supporting neonatal professionals to deliver high quality baby-centred care and involve parents actively in their babies' care.Placing premature and sick babies' voices at the heart of decision-making to ensure that their best interests are always put first.Supporting research that can tangibly improve outcomes for babies born premature or sick.
Conor was born first, weighing 2lb 2oz, followed by Rory at 1lb 7oz ! Only 25weeks gestation they were given a 60-40% chance of survival.
Immediately taken from me, tubes inserted into their tiny bodies. Intravenous lines, NG tubes and ventilation.
The start of a crazy roller coaster ride. Elated one day despairing the next.
The Doctors tried everything to get Rory to breathe on his own, different levels of oxygen pumped in, a special hat to hold the tubes in place.Rory was a fighter, he fought like a soldier. The Wednesday before his death the staff contacted us informing us Rory needed to go back on the ventilator. His tired little body was swollen from fighting. It was unlikely he would now come off the ventilator.
We were up at the unit almost every waking hour. When we did go home to sleep, we always telephoned before getting into bed. In the morning before we returned, again we would ring. The staff were always there to support us. Often when I set my alarm to get up and use my breast pump, I would get an overwhelming urge to speak to them about the boys. On the Friday night, as we were getting into bed they said Rory had deteriorated.
Saturday 2nd February 2013 dawned a lovely spring day. We travelled up to the unit with heavy hearts. Rory was in a small room just off the main intensive care area. All his observations recorded by the staff confirmed he was shutting down. He couldn't continue to fight. It was too painful. The staff were skilled in just knowing how to handle the situation facing us. Rory was fed for the last time though one of his tubes so he would not be hungry then the ventilator and all the tubes were removed. Rory was placed in our outstretched, protective arms, for the last time............. There he was allowed to die with such dignity.
Conor finally came home with us the day Rory passed away. He is a very happy & healthy little boy soon to be 5!
People who know us, know this will be one of the toughest things We have ever taken on! never running more than 5k.
Please support us on this journey, its for a great cause and in memory our little solider Rory.
Rory will be running every step together with his Mummy & Daddy.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity
Conor and Rory Stott were born at 25 weeks gestation on 29th September 2012 at The Royal Oldham Hospital. They were cared for by Us both, our family & by the staff at TROH Neonatal Unit. Rory lived for 129 days thanks to the work and research that the unit undertakes, and for the support & research given from Bliss.
We are running the London Marathon in memory of my gorgeous son Rory, Conor & Harry's brother and to raise money for Bliss,
They champion the right for every baby born premature or sick to receive the best care by:
Supporting parents of babies born premature or sick to be as involved as possible in care and decision-making for their babies.Supporting neonatal professionals to deliver high quality baby-centred care and involve parents actively in their babies' care.Placing premature and sick babies' voices at the heart of decision-making to ensure that their best interests are always put first.Supporting research that can tangibly improve outcomes for babies born premature or sick.
Conor was born first, weighing 2lb 2oz, followed by Rory at 1lb 7oz ! Only 25weeks gestation they were given a 60-40% chance of survival.
Immediately taken from me, tubes inserted into their tiny bodies. Intravenous lines, NG tubes and ventilation.
The start of a crazy roller coaster ride. Elated one day despairing the next.
The Doctors tried everything to get Rory to breathe on his own, different levels of oxygen pumped in, a special hat to hold the tubes in place.Rory was a fighter, he fought like a soldier. The Wednesday before his death the staff contacted us informing us Rory needed to go back on the ventilator. His tired little body was swollen from fighting. It was unlikely he would now come off the ventilator.
We were up at the unit almost every waking hour. When we did go home to sleep, we always telephoned before getting into bed. In the morning before we returned, again we would ring. The staff were always there to support us. Often when I set my alarm to get up and use my breast pump, I would get an overwhelming urge to speak to them about the boys. On the Friday night, as we were getting into bed they said Rory had deteriorated.
Saturday 2nd February 2013 dawned a lovely spring day. We travelled up to the unit with heavy hearts. Rory was in a small room just off the main intensive care area. All his observations recorded by the staff confirmed he was shutting down. He couldn't continue to fight. It was too painful. The staff were skilled in just knowing how to handle the situation facing us. Rory was fed for the last time though one of his tubes so he would not be hungry then the ventilator and all the tubes were removed. Rory was placed in our outstretched, protective arms, for the last time............. There he was allowed to die with such dignity.
Conor finally came home with us the day Rory passed away. He is a very happy & healthy little boy soon to be 5!
People who know us, know this will be one of the toughest things We have ever taken on! never running more than 5k.
Please support us on this journey, its for a great cause and in memory our little solider Rory.
Rory will be running every step together with his Mummy & Daddy.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity