PSPA is the only UK charity dedicated to improving the lives of people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We provide information and support for people affected by PSP & CBD whilst funding research into the causes, treatment, and eventually a cure. Together we can stop PSP & CBD in their tracks.

Our beautiful mum was diagnosed with this cruel and crippling disease in July 2022.

PSP is progressive and currently has no cure 

and no medication to prolong or stop the effects of it.

It affects mum’s balance, putting her at a constant risk of falling and meaning she can no longer walk unaided.

It affects her swallow which means she is at risk of choking and she has had to change her diet and miss out on so many things she used to enjoy eating. 

Her speech is affected and has become quieter and it is an effort for her to talk and communicate easily. 

It also affects her sight and causes tremors. 💔

But she is still mum. ❤️

Our amazing, loving , funny, beautiful mum ❤️

Her will, strength and determination is absolutely incredible. 

Mum has taken everything that has been thrown at her in her stride and she doesn’t let any of it stop her doing all the things she has always done. Especially with all of her grandchildren. 

I want to run the half marathon for my mum and I am determined to get round as quickly as I can. 

I want to raise money for the PSP foundation in the hope that more vital research can be done so that our amazing mum and everyone else suffering from the condition, can get as much help and support as possible to be able to continue living the life they always have done. 

Thank you so so much for supporting this. 

It means everything x