Becky and I unfortunatley lost our beautiful baby girl Ruby who was born asleep prematurely on 25th June 2011. We have since found out that Ruby had Prader-Willi Syndrome, therefore as a family we have set out to raise funds for this very worthy cause which is obviously close to our heart. We would really appreciate your help in our quest to raise funds for the Prader-Willi Syndrome Association, however large or small your donation you can be assured that every penny will help someone with this rare syndrome. Thanking you Jason, Becky, Hannah, Grace & George.
Ruby's Metzger's page
Fundraising for Prader-Willi Syndrome Association Uk
Prader-Willi Syndrome is a rare genetic abnormality causing physical and mental disabilities throughout life. PWSA UK is the only UK organisation dedicated to supporting those with PWS, their families/carers and the professionals involved with them. Please do visit at www.pwsa.co.uk.
Charity Registration No. 1155846