Our mission is beat vitiligo by eradicating the psychological, social and physical effects on people’s lives.
We do this by:
- Providing up-to-date information on vitiligo
and contributing the latest research.
- Providing support services.
- Running awareness campaigns
Story
I first found out I had Vitiligo in my teens when I noticed
a few white patches which just burnt in the sun, then over the years the patches
of white skin progressively spread. I’m a lot more fortunate than a lot of Vitiligo
sufferers insomuch as I’m fair skinned so you’d never really notice I had it,
apart from the summer months when the non-Vitiligo skin tans and contrasts the
white patches so much more. You end up having this love/hate relationship with
winter and summer. I love the summer heat but I hate having to wear ultra high
factor or long sleeves and trousers, and then in the winter, I don’t like the
cold but am thankful for it, as I can cover up completely.
Whilst Vitiligo isn’t a life threatening condition, it causes
great psychological distress especially where the effects of depigmentation are
so much more pronounced in darker skinned people. There isn’t yet a known cure,
although there are treatments which can alleviate or reverse the depigmentation
but the long-term results aren’t always stable; the patches can and often do
return.
This is the 25th anniversary year of the Vitiligo
Society and we’re looking to use my marathon run as a significant fund-raising
opportunity. We’re not a big charity but the information and support that we
can offer to sufferers both existing and newly diagnosed is vital to help people
learn to cope and come to terms with the condition.
I know there’s a lot of other demands on your money these
days but please give a little to the Vitiligo Society.