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Steve Murphy avatar
Steve Murphy

Steve's 1/2 Marathon

On 6th December I'm running my first 1/2 marathon for Tree of Hope because I'd like to raise money for Lewis' sensory garden

242 %
£484.39
raised of £200 target
by 26 supporters
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  • Event: Lewis Herbert 2 Appeal, 30 Nov 2020

Tree of Hope

We offer hope to families to transform the lives of sick children

Charity Registration No. 1149254 In Scotland SC042611

Story

This handsome young man is my friend's son Lewis. 

Here is his story:


My name is Lewis Herbert and I was born in 2002.  I was diagnosed with West Syndrome at 3 months of age.

 

This has since developed into a condition called Lennox Gastaut Syndrome (LGS).  LGS is a rare and extremely severe form of epilepsy with multiple seizure types.  It causes severe global developmental delay.    

I can have 100’s of different seizures every day and my condition is resistant to any medication or therapies which have been tried. 

 

I am severely disabled and unable to do anything for myself.  I rely on my Mummy and Daddy for all my personal care needs.  I require 24hr care on a daily basis and Mummy and Daddy have had to give up work to look after me!


I
 would love to able to access my back garden at home, but I am not able to as our garden path is too small for my wheelchair, and we have no ramp!
I absolutely love any sort of sensory equipment, and I would love to be able to turn my back garden into a sensory garden with a water feature, wind chimes, light and sound arch, musical chimes, mirrors, raised scented flower beds, special sensory outdoor mood lighting around my garden.


This would enable me to access our garden and be pushed around in my wheelchair, as at the moment I can't go into our garden at all, and I am isolated with either Mummy or Daddy inside our house, while my sister and brother play outside!
To be able to access my garden would be absolutely wonderful.

It would enable me to spend quality time in our garden with my family, something I am unable to do at present.
I really hope you are able to help contribute to my dream of a Wheelchair Accessible/Sensory Garden at home.  


Love

Lewis x  

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Supporters

26