What is SMS?   It's a genetic disability due to a microdeletion or mutation on chromosome 17.  Major features of SMS include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances, and behavioural problems.  Individuals with SMS are often described as having endearing and affectionate personalities, and a great sense of humour.

Alfred is 17 months old, and was diagnosed with SMS at 12 months.  He has wonderful parents in Jess and Don, and the sweetest big brother, Henry.  Please have a read of the instagram blog 'alfred_and_sms'  where Jess documents Alfred's progress.

When Robert and I found out about SMS Foundation and all the help that it could offer Alfred and family - and so many other families - well, we jumped at the chance to try and raise a few £'s. 

We love you Alfred!

Matthew and Rob x