Story
THIS IS IT.......... my JustGiving page.
We are doing all we can as a family to raise money and awareness for Cystic Fibrosis and the Charity that supports this Life-Threatening Disease, there are many new and exciting things happening in the world of Cystic Fibrosis that are literally changing peoples lives and giving a brighter future, wouldn't it be great to support such a great cause!!
So welcome to RUNNING4RONNIE
Ronnie (my gorgeous boy) is one of the over 9000 people in the UK born with Cystic Fibrosis. CF is the UK's most life threatening inherited diseases, it is not a contagious disease but caused by inheriting two faulty genes one from each parent. Over 2 million people in the UK carry this faulty gene!!!
Have a click on the video link on this page, it's a great little film explaining what CF is........
Sooooooooo what am i doing you ask???
I'm running/walking/dancing/anything 4 Ronnie, to raise money for the "CF Trust" they are the UK's only national charity dedicated to all aspects of CF. Here is what they do.......they fund the ongoing research for a cure, they fund improving medication to make day to day life more "normal" and they also fund specialised clinics & train top consultants and nurses to give our loved ones the very best treatment and care.
There is no government funding for Cystic Fibrosis so all the work done by the Trust is totally reliant on generous donations!!!!
Ours would be a different story if it wasn't for the CF Trust, so anything you can give is greatly appreciated by my family and the 9,000 other families fighting this disease everyday, every £1 makes a difference.
Over the past 12 months we have been running, walking, selling & even making things in order to raise money & awareness for the CF Trust so if you could support us by making a donation we would be so greatful...... just follow the instructions below to Donate quickly and safely, knowing the money goes straight to the CF Trust....oh and don't forget to leave a message, always lovely to know who has donated :) http://www.cftrust.org.uk/
JUST CLICK ON THE LINK TO DONATE
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now. XXX