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Running For Johnny

Grace Fraser is raising money for Cystic Fibrosis Trust
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London Marathon 2018 · 22 April 2018 ·

Cystic Fibrosis Trust Verified by JustGiving
RCN 1079049 (England and Wales) & SC040196 (Scotland)
Cystic fibrosis (CF) is a life-shortening genetic condition that slowly destroys the lungs and digestive system. The Cystic Fibrosis Trust is the only UK-wide charity fighting for a life unlimited, when everyone living with CF can look forward to a long, healthy life. www.cysticfibrosis.org.uk

Story

My beautiful Godson Johnny was just five weeks old when he was diagnosed with Cystic Fibrosis. In October 2010 I ran the Royal Parks Half Marthon to raise money for the CF Trust and when my foot hit that finish line a thought passed my mind, oh my imagine having to run that same distance again?! At that point I think I collapsed in a bundle on the floor! 8 years on here I am, far less fit but absolutely up for the challenge!  Johnny is a little warrior, 7yrs old and doing incredibly well. He has more joy, energy and spirit than any child I know. He takes daily medications and a concoction of vitamins. He has physio twice every day and uses two inhalers and a nebuliser machine each night. CF is a progressive disease and so the future is unknown, making his health routine essential. Running the London Marathon is most definitely a one off for me, a once in a lifetime but for Johnny this is his life. Thank you so much for visiting my page and taking time to read my story, I appreciate it more than you will ever know. Please dig deep and support me and the CF Trust as I run the London Marathon for Johnny. Let’s smash my fundraising target and get me over that finish line!

Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.

Donation summary

Total
£6,408.20
+ £912.05 Gift Aid
Online
£6,408.20
Offline
£0.00

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