Hello Firstly I would just like to introduce myself and Logan, I am Russell, Teddy's Dad and Logan is Teddy's uncle. 

Teddy was born on 17 July 2020, in a very poor condition and had to be resuscitated, he was then taken to the Neonatal Ward in Northampton and at 5 hours old Teddy had his first seizure, at 10 hours old he transferred to Leicester Royal Infirmary Hospital, where he spent the next 5 weeks being monitored in ICU. Immediately after his first seizure Teddy was given a drug to control his seizures. 

After being transferred back to Northampton Hospital Teddy spent a week there before he was finally allowed to go home. A week later we received news that Teddy had been diagnosed with a very rare form of Early Epileptic Encephalopathy. He was having up to 20 seizures a day and required to be monitored 24 hours a day. The most painful part of this experience is that there is nothing we could do to help when he was having a seizure. 

Teddy is now on 4 different types of medication to reduce his seizures down to 3-8 a day.  Knowledge is power and thanks to the research that charities like Young Epilepsy have conducted, breakthrough medicines have been created which has meant Teddy seizure frequency has reduced.

Young Epilepsy is the national charity working exclusively on behalf of the 112,000 children and young people aged 25 and under with epilepsy and associated conditions. 

They exist to improve the lives of children and young people with the condition to enable them to fulfill their potential and ensure they have the best quality of life.

 With over 100 years expertise it provides world class diagnosis, assessment and rehabilitation for children and young people with epilepsy. The charity also carries out research into the condition and how it can be treated.

It has a unique blend of specialist services including a school, college and residential services providing education and healthcare for children and young people with epilepsy, autism and other neurological conditions.The charity provides a range of support and information for parents, children and young people and training for professionals. It campaigns for better access to, and quality of, health and education services, and to raise awareness and increase understanding of epilepsy.

Young Epilepsy has developed a new range of services since 2008 including our helpline, health information resources, training courses for professionals in health, social care and education and the promotion of good practice in schools.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.