My name is Ryan Longmuir the good looking guy on the left for those who do not know me. I am embarking on the adventure of a lifetime to climb the highest free standing mountain in the world. Namely Mount Kilimanjaro in Africa standing at a height of 5896 Metres.
Although i am thrilled and looking forward to this great adventure the real reason for my endevour is to raise vital funds for the Scottish Spina Bifida Assosciation. This is a local charity close to my heart where I have seen first hand how it is making a direct impact on the lifes of many children and their families who are born with Spina Bifida and/or Hydrocephalus. The amazing thing for me is due to it being a small independant charity the money raised will go directly to use in transforming children's lifes.
The Scottish Spina Bifida Association is the only Scottish charity dedicated to
providing advice and support to people born with spina bifida and/or hydrocephalus
and their families. Most of those born with spina bifida are paralysed from the
waist down and will have life-long complex kidney, bladder and bowel problems. In
addition 80% will have the condition hydrocephalus. This condition causes numerous
neurological disorders including some problems with speech, sound, impaired
concentration and organisational skills. Both conditions cause life-long complex
disabilities of which there is no cure.
Without their family support services, support centre and lo-call helpline many
people would not have access to the support they require. Every year their family
support workers handle over 2500 enquiries from children, young people, adults and
their families, provide support groups, health checks and clinics throughout
Scotland and make over 250 home and hospital visits. Their Family Support Centre,
in Cumbernauld, has allowed them to expand their facilities by providing further
training, information days, recreational and support groups and health checks, all
in a family friendly, wheelchair accessible environment. Most recently they have
built an inclusive play area allowing children of all abilities to play on the same
play equipment together, in many cases for the first time.
They receive less than 4% in government funding and to ensure that they maintain
their current level of services they require to raise over £800,000 annually. To do
this they rely mainly on sponsored challenges, events and donations from supporters
so any donations really help them make a difference.
Check out there website @ www.ssba.org.uk
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