Tri for Shani

Shine for Shani is raising money for Shine for Shani

Participants: Simon Berman, Jonny Friedman, Eddie Hammerman

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2022 Blenheim Palace Triathlon · 28 May 2022 to 29 May 2022 ·

Shani had a large hole in her heart and no artery between her heart and lungs. She suffered heart failure and her family was told she wouldn't recover. Yet, for 5 3/4 yrs, until she died, Shani was a joyful little girl, with a magic heart. We now help other heart children live full and happy lives.

Story

Trying for a triathlon for Shani

Simon has never run a triathlon before so this a big challenge for him! But he's in safe hands with experienced triathletes and great mates Jonny and Eddie also taking part. There's an 800 m swim around a lake, a bike ride for 20 km and then a run for 5.6 km through the beautiful grounds of Blenheim Palace. Why are we doing it? The physical challenge is certainly a reason but the main driver is to raise money in memory of Simon's wonderful daughter Shani who died in 2017 whilst she was still just 5.

Shani's Story

Shani was born with a complex congenital heart defect - a large hole in her heart and no valve linking her heart to her lungs. Amazing surgeons at Great Ormond Street Hospital implanted a tiny Gore-Tex tube into her heart where the valve should have been. Then, at 20 months Shani suffered from heart failure and we were told she would not recover. Yet, remarkably, over the next four years, Shani grew into a lively little girl, with a "magic heart". She went to school, made friends and was a happy, inspiring and joyful child. However, at aged five, her oxygen levels depleted further, and the doctors decided to operate - tragically, Shani did not survive the complex operation.

Shine For Shani

The Shine For Shani charity helps to make Shani's memory into a blessing and to raise money to help Great Ormond Street Hospital and other centers of excellence in pediatric cardiology and research help other heart children live full and happy lives. The money we are raising will go towards £85,000 to buy a brand new ECMO machine (heart and lung bypass) for the GOSH pediatric intensive care unit, which will make a massive difference to the life chances of some very unwell children.

Donation summary

Total
£6,067.61
+ £1,112.00 Gift Aid
Online
£5,017.61
Offline
£1,050.00

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