Sacha's page

Sacha Boutin-Kilby is raising money for Niemann-Pick UK

Participants: Sacha Boutin-Kilby

Story

Thanks for taking the time to visit my JustGiving page.

In 2007, 2 year old, Hollie, was diagnosed with Niemann Pick Type C, an extremely rare metabolic condition which causes neurological decline and for which there is no cure. Less than 100 children suffer from this condition in the UK and only 1000 worldwide. There are three recognised forms of Niemann-Pick Disease, Niemann-Pick Type A, B and C. Niemann-Pick Type A and B are caused by an enzyme deficiency, causing a build up of toxic materials in the body's cells. Niemann-Pick Type C is not caused by an enzyme deficiency, but the end result is the same; an accumulation of materials (cholesterol and other fatty acids) in the body's cells.

Please help us find a cure for this devastating disease, that will enable Hollie to live to adulthood and enjoy her life, something which we all take for granted! We will be doing a Skydive to fundraise for Hope for Hollie on the 14th August! We are all very excited, but also very nervous too!! Please, Please, give money to this amazing cause to help this gorgeous little girl survive!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.