Thanks for taking the time to visit my JustGiving page.

I am privileged to work with families of children with Batten disease. It is a rare and cruel disease that is a form of childhood dementia. There is no cure.

Every day when I go to work I am staggered by how wonderful the families are and how much they need our support. Batten disease is so rare that many people haven't heard of it and cannot comprehend the devastation this disease causes to a family.

It is vital that the BDFA thrives and so I'm taking on a challenge and need your help to raise crucial funds for this small but fierce charity.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.