On Sunday the 18th October I will begin a 100 mile charity walk which I will complete within 2 weeks, I'm aiming for 10 miles a day with a couple of rest days midway and will be joined on some sections by friends and family. 
I've chosen this date because it marks 3 years since I lost my amazing husband to this terrible disease.
It is a rare disease which many people know very little about just like our family didn't in the beginning .  I'm including a clip of Rob Burrows rugby player so you can understand more about it and donate so we can raise enough towards equipment to help sufferers with care, mobility or to maintain communication with loved ones during such a horrendous journey.
To be able to help even one family will make this so worthwhile. 

I would like 50% of the funds I raise to go to research and 50% to go to the Cleveland Group