sarah fernando

Sarah and Amara Fernando's page

Fundraising for Reverse Rett
£1,552
raised
Donations cannot currently be made to this page
Event: Just Walk 2013, on 11 May 2013
Reverse Rett

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RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

On 11 May, Amara and I are undertaking the 10k 'Just Walk' to raise money for the Rett Syndrome Research Trust UK and to show our support to a close friend whose 6 year daughter was recently diagnosed with Rett Syndrome.

Rett Syndrome is a debilitating disorder, the symptoms of which include breathing difficulties, digestive problems, seizures, impaired cardiac and circulatory function, scoliosis and Parkinson-like tremors.

I can’t imagine, as a parent, how you start to come to terms with the devastating news that your little girl has Rett Syndrome. However, there is now hope that a cure can be found, with recent research showing the possibility that Rett Syndrome can be reversed. The Rett Syndrome Research Trust UK is exclusively focused on speeding treatments and cures for Rett Syndrome.

Please give anything you can to support the work of the Rett Syndrome Research Trust UK and give parents of Rett sufferers the hope that a cure can be found.

Thank you.

Sarah

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£1,552.00
+ £295.00 Gift Aid
Online donations
£1,200.00
Offline donations
£352.00

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