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521 %
raised of £1,000 target
by 60 supporters
Elaine Phillpot avatar
Elaine Phillpot

Remembering Sarah

Fundraising for IIH UK

521 %
raised of £1,000 target
by 60 supporters


We raise the profile of IIH to Improve the lives of sufferers

Charity Registration No. 1143522


Sarah suffered from IIH, a debilitating incurable brain disease. After an 11 month battle and over 22  operations, most of which were brain operations Sarah passed on 6/9/2011 at the age of 23.

Many people havnt heard of IIH - Sarah even tought her GP about the disease.

We need to make people aware of this disease and get money into the charity to fund possible cures.

The quote below is from someone suffering from IIH:

Imagine your head feels as though it's been crushed by a vice, a headache unlike anything you've ever felt before, where every part of your head hurts and the pressure is unbearable, and it's a pain no-one can see.

Imagine a world in permanent soft focus, where things come in twos, where things disappear momentarily, where you can't tell how deep a step is, where bright light is a pain you can't stand.

Imagine a world that sways around you, where you feel as though you're in the middle of a storm on a cross channel ferry, feeling dizzy and sick - yet you're standing still.

Imagine you're so totally exhausted that your body doesn't want to move and all you want to do is sleep, yet an incessant roaring in your ears keeps you awake.

Imagine feeling lost and fearful, confused in a place you used to know well.

Welcome to the world of IIH!

Copyrighted to Rachel Turner IIH UK

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  • A small glimpse of Sarah's surgery
  • Sarah and Stuarts Garden +10