Hi im Sarah
And I have Gaucher, I was diagnosed 2 yrs ago & I must say id never herd of my illness.
This is why I want to raise awareness & funding as everyone I talk to about this has never herd of it , Including many Doctors.
This is a concern for myself & fellow Gaucher patients.
Gaucher is only part gov funded & thier are a few people that are so dedicated to taking care of us Dr Hughes & Linda from The Royal Free Hospital in London give up so much of their time to talk to us & take care of people with rare illness.
I have 2 wonderful nurses Debbie & Val who give me my weekly infusion & without Funding & Awareness receiving my weekly medication wouldnt be possible.
So please keep donating & sharing as it is so important that we get the support we so need.
Thank you for all who has Donated & Shared on FB & Twitter .
Kind regards & Many Thanks Sarah
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