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Sarah-Jay Pickton avatar
Sarah-Jay Pickton

Sarah-Jay's Gaucher disease

Shaving my Hair off on the 13th Nov 2013 for The Gauchers Association Limited because I want to raise Awareness

43 %
£434.00
raised of £1,000 target
by 33 supporters
Donate

The Gauchers Association Limited

We fund & support research to improve the lives of Gaucher patients

Charity Registration No. 1095657

Story

Hi im Sarah 

And I have Gaucher, I was diagnosed 2 yrs ago & I must say id never herd of my illness.

This is why I want to raise awareness & funding as everyone I talk to about this has never herd of it  , Including many Doctors.

This is a concern for myself & fellow Gaucher patients.

Gaucher is only part gov funded & thier are a few people that are so dedicated to taking care of us Dr Hughes & Linda from The Royal Free Hospital in London give up so much of their time to talk to us & take care of people with rare illness.

I have 2 wonderful nurses Debbie & Val who give me my weekly infusion & without Funding & Awareness receiving my weekly medication wouldnt be possible.

So please keep donating & sharing as it is so important that we get the support we so need.

Thank you for all who has Donated & Shared on FB & Twitter .

Kind regards & Many Thanks Sarah

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Photos

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  • Having my Medication

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