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The last big challenge I did for CCHS was in May 2019 - running 106 km for the Isle of Wight ultra. Last September, I did the 60-mile challenge for Cancer Research and got the running bug back! So, I started looking for my next challenge…

My gorgeous godson, Charlie, has CCHS, and my best friend and her husband have to do so much to keep Charlie alive every day. Charlie stops breathing every night, every time he has a nap, every time he concentrates hard. His survival means being attached to a mechanical ventilator. I can't do much to support them in day-to-day life, but what I can do is complete crazy challenges and raise money for the charity that supports families like theirs.

CCHS is short for Congenital Central Hypoventilation Syndrome. It’s a rare genetic condition affecting the automatic control of breathing. Breathing for most of us happens automatically - however in CCHS, the normal safeguards used by the nervous system to control breathing don’t work. Most CCHS people mainly experience symptoms when asleep, but some can also stop breathing or under-breathe when awake. The genetic mutation that causes the condition also affects digestion, heart rate, blood pressure and body temperature. 

I have made the target big, because this is a big challenge... I would LOVE to raise over £5,000. 

Charlie is an incredible boy - he is five, has started school and he embraces everything that life throws at him. This is not only because of the awesome boy he is, but also because of the awesome parents he has!

This challenge is a biggie, the South Downs Way is not a flat run..... there will be plenty of hills and there will be gruelling hours of training being squeezed in around the busyness of life! I have met a superstar trainer who has kindly taken on the challenge of getting me physically and mentally ready - he is even going to try and get me to stretch!! I am lucky to have an amazing support crew, including my patient partner, Max and ever supportive Dad! I think they will need lots of luck as apparently I can be ever so slightly stubborn. Some of my close family and friends think I'm mad and are worried about the scale of this challenge... but they also understand the importance of the charity and the reasons I want to do this.

Thank you for your kind sponsorship, I know times are tough and the cost of living and life generally has gone up so much - so do really appreciate it.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.