sarah's page
sarah skilton is raising money for Pulmonary Hypertension Association UK
Participants: Rebecca Davies Kelly Robinson
Story
Would like to say a massive thanks to u Melissa ;) your donation means a lot to me ! Whoo hoo I'm nearly at £1300 now please if anyone else can spare a few pounds it will really help x
Thanks to my lovely friend Lisa for your generous donation and for all the support ;) mile 18 ill be on the lookout for my girls xxxx
Would like to say thankyou to Carrie and dan for their generous donation :) see u on the other side x
Thank you for your donation Tina and your message of support ;) feeling alot more positive now and excited to be part of it x
Whoo hoo we are getting closer to the big day , going to London Friday to collect number and tracking chip , this week is gonna be a restless one as no running now til Sunday still time to donate x
Thank you Michelle for your donation and support , feeling nervous now and hoping the weather isn't too hot and everyone involved stays safe x
Thankyou Haley for your donation :) it's much appreciated ! X
Would like to thank the bishop family for the generous donation :) obviously we share the wish to raise lots of cash for the pha as its close to us all ! Bring on Sunday the 21st ;) if anyone else wishes to donate please do there's still time
9 days to go and counting ! That's how long I have to shake this cold off been well for 3 months :( if anyone still wants to sponser me there's still time
The last 6 months has been tough and myself and all the others preparing for the London marathon , we've had the worst winter ever and it's looking likely that it's now gonna warm up massively by next week ! Not to sure how well we will cope with that but hey ho ! So training is drawing to an end now and thought I would share what I've achieved in my training !468.7 miles! 75.26hours 35,209 calories burnt in 87 workouts ! So please reward my efforts and give a little to this charity that means so much to me x
Thankyou for your donation Hannah and support ;) it really has been tough going but nearly there now ! Let me know if you and your mates want to come to our st trinians post marathon party , the band we've got are excellent I know you would love it ! X
Ros thankyou so much for your generosity and kind message I can honestly say I've never been so nervous about anything and after a 20 mile run Sunday , your message brought tears to my eyes ! The training has been physically and mentally draining but it's all gonna be worth it as we've raised a lot for this charity which means a lot to us and on the day when I feel I can go no more I like to hope that Len will be looking down helping me on xxxxx
Massive thankyou to my mate Gary for his generous donation seems now the harder I hurt the more donations I get ! Bring on the pain and the cash ;)
16miles today out for 2.5 hours several toilet stops though ;) please reward my efforts on such a cold day x
This Sunday it will be 10 weeks before I run 26 miles to raise money for for the pha uk charity , ran 14 miles yesterday and 10 today , on average I'm running about 40 miles a week ! Last week was a tough one but I'm feeling good this week ! Please help me reach my target of £950.00
Well Sharon has kick started my donation drought ;) it's Friday if anyone is feeling generous please give to this worth while cause ;) I am working very hard and have clocked around 140 miles in the month of January ! I am knackered so please reward my efforts x thanks
Updated on Jan 9th 2013 at 6:56 PM from the JustGiving API
Good day today managed 1hour 30 minute run and 1hour on the bike !
Updated on Jan 6th 2013 at 1:14 PM from the JustGiving API
First 5.5 mile done in 3 weeks ! First 20 minutes hurt , but my running shoes are back on so onwards and upwards ;)
Updated on Jan 6th 2013 at 1:10 PM from the JustGiving API
First run after nearly 3 weeks ! It hurt for the first 20 minutes , onwards and upwards now ;) 90 minutes planned for tomorrow
Updated on Dec 10th 2012 at 2:15 PM from the JustGiving API
Just ran 10.9k but my phone died on me and didn't save mapmyrun! ;( very cold out there today ,
Updated on Dec 5th 2012 at 5:01 PM from the JustGiving API
Well apart from running in the scorching heat ( still possible in April ) I have trained now in every possible weather , rain being my speciality , so hopefully come April my body will be prepared !today I got my official email with my guaranteed place :) so please carry on giving to the pha uk I really want to get as much as I can and I'm working really hard to make your donations worthwhile ;) also u can text SARS99 with your amount to 70070 xxxxx run forest run
Updated on Nov 29th 2012 at 5:59 AM from the JustGiving API
Thankyou to marg ! And also Thankyou to Ali for your donations ;)
Updated on Nov 18th 2012 at 10:01 AM from the JustGiving API
Up early this morning 12 miles done in 1hr 43 mins ! Bit quicker must be the jäger still in my veins ! Social events must take a back seat as I have no will power ;) spent all if yesterday wasted ! Feel better now and its a lovely morning x
Updated on Nov 18th 2012 at 9:53 AM from the JustGiving API
Up early 12 miles done in 1hr43 mins ! Bit quicker must be the jäger still in my veins ! Social events are defo gonna have to take a back seat ( as I have no will power ) spent all day yesterday wasted ;) lovely morning though x
Updated on Nov 16th 2012 at 5:34 PM from the JustGiving API
Damp and foggy conditions today whilst running but nothing will deter me ( maybe snow ;) ) its been a good week so far ! Another 20k planned for tomorrow , keep giving and I'll keep running xxx also u can donate by text to SARS99 the amount £ 2.00 to 70070
Updated on Nov 10th 2012 at 6:44 PM from the JustGiving API
1hr 45mins , longest run so far ! Fine apart from I'm not running in the dark again ! I must have night blindness , struggled to see got taken out by bush and fell off the kerb into the road !
Updated on Nov 9th 2012 at 6:48 PM from the JustGiving API
Ran 10k today with ease compared to how it's felt of late , so if anyone feels like giving me some cash towards this wonderful little charity that give hope and support please do ;) no one has sponsored me for a while and I really want to reach beyond my target ! I don't think I will be ever able to do this again ! It's tough guys x
Updated on Nov 4th 2012 at 11:43 AM from the JustGiving API
Another run in the rain :(
Updated on Nov 2nd 2012 at 7:13 PM from the JustGiving API
My usual 10k on a Friday and for once it wasn't raining ;) been a tough week though ! Remember you can also donate by texting SARS99 £ 5 to 70070;)
Updated on Oct 30th 2012 at 10:22 PM from the JustGiving API
Thankyou Lucy for your donation , your a star ;) x
Updated on Oct 30th 2012 at 9:36 PM from the JustGiving API
After over a month of being teetotal I caved in on Sunday and Monday and today's run was not so easy , Its gonna take alot of dedication to be good for so long ;) want to thank all those who have sponsored me so far and for those who havnt yet , remember its not easy being good ;)
Updated on Oct 26th 2012 at 10:09 AM from the JustGiving API
If anyone is feeling generous today I could really do with the support the thought of going out running today again in this horrible weather is really grim ! Remember you can donate by text to SARS99 amount £ then send to 70070 ! ;) x
Updated on Oct 26th 2012 at 10:03 AM from the JustGiving API
Anyone feeling generous today i need support the thought of going out running in this weather again today is hard going , remember you can also donate by text SARS99 to 70070 with amount ! Just look outside and think of me running in this ;)
Updated on Oct 19th 2012 at 3:44 PM from the JustGiving API
Just ran 10k in this beautiful weather ! Still it may be like this come the 21st April ! Lesson learnt today when it's raining I need to wear shorts , it felt like each leg weighed a stone heavier! Thanks to everyone supporting me and please keep it coming ;) time for a hot bath
Updated on Oct 18th 2012 at 12:40 PM from the JustGiving API
Only me ;) for those of u who didn't know I did a 10k run on Sunday titsy trail @ Oxted ! It was tough but I was pleased with my time 53 minutes and I came 19th out of 138 women , I have calculated very roughly I need to raise 18.59 a week to reach my goal , so if u are feeling generous today then why not sponsor me and feel good about yourselves for the rest of the day ;)
Updated on Oct 18th 2012 at 12:34 PM from the JustGiving API
"only me" for those of u who didn't know I did a 10k run @ Oxted titsey trail on Sunday it was tough but was very pleased with my time 53mins and my place 19th out of 138 women , I have worked out that in order to reach my target I roughly need to raise 18.50 a week so if your feeling generous then give a little to this wonderful charity ;) go on u will feel good about yourself all day x
Updated on Oct 12th 2012 at 3:41 PM from the JustGiving API
For all of you who know me well I'm a bit fast and furious always in a rush , this is obviously not the way forward when training for a marathon do on the advice of my brother I have slowed it right down and ran 10k today in 55 minutes which is slow but think getting stung on the leg helped to slow me down :( thx to all of those supporting me on this journey x
Updated on Oct 9th 2012 at 10:24 AM from the JustGiving API
Just wanted to give a massive thanks to my wonderful friend Emma ( tall Emma as my kids call her !) as I have 2 wonderful friends bearing that name for raising a massive £90 pounds and also to Marcus for his generous donation ! No wonder Emma loves u so much ;)
Updated on Oct 7th 2012 at 2:21 PM from the JustGiving API
Thankyou Ali , it's going ok at moment ! I've got a race in Oxted next Sunday with my brother ;) legs are getting muscley ! Lol ! Thx for your support x
Updated on Oct 7th 2012 at 10:05 AM from the JustGiving API
Another 50 min run today with a steady run up whyteleafe hill , so for all of you who have sponsored me I am working hard ;)
Updated on Oct 5th 2012 at 8:18 PM from the JustGiving API
Thankyou darling sister ! Donating when u have so little ! Love you x
Updated on Oct 5th 2012 at 1:24 PM from the JustGiving API
Have really found this week tough in terms of motivation, but despite this have managed a 50 minute run today , please keep your donations coming to keep me inspired ! And don't forget u can also donate by texting SARS99 £5 to 70070 ;)! Thx
Updated on Oct 5th 2012 at 1:19 PM from the JustGiving API
Have really found this week tough ! In terms of motivation , but despite this managed a 50 minute run today , please keep your donations coming to keep me inspired ! And don't forget you can also donate via text by texting SARS99 £ 5 to 70070 ! ;) x
Updated on Sep 28th 2012 at 5:38 PM from the JustGiving API
Thankyou burnsie ;) much appreciated love ya x
Updated on Sep 28th 2012 at 5:20 PM from the JustGiving API
Thankyou mikala , today has been worthwhile now ;) x
Updated on Sep 28th 2012 at 4:47 PM from the JustGiving API
Been for a 10 k run today , does anyone think that maybe they could spare as little as a £1.00 to reward my efforts ;)
Updated on Sep 21st 2012 at 10:11 AM from the JustGiving API
Your donations last night gave me the kick up the arse I needed , first run done although only managed to run half way up waller , still in recovery now ;) keep it coming guys x
Updated on Sep 20th 2012 at 7:23 PM from the JustGiving API
To all my fb buddies ! Have recieved my running vest and sponsor forms for the London marathon! It's feeling real now so am putting my running shoes on tomorrow , help me to get motivated by helping to raise money for this charity that will help improve the lives of those living with this condition ! Obviously this is close to home for me and I want to raise as much as I can in support of my dear friends ! Come on guys as little as a £1.00 will help ;)
Updated on Jul 12th 2012 at 8:03 AM from the JustGiving API
Would like to give a massive thanks to those who donated yesterday after what must have been the worst day ever for parents bex and Darren waiting for their daughter to return from surgery , and we are all wishing brave Chloe makes a speedy recovery from this op ! Keep it coming guys and carry on sharing on your own fb page too ! X
2 years ago i met a lovely family through a mutual friend and although i had seen them around in the school playground never realised what they had been through, they are now very good friends of mine and there little girl is inspirational although living with this condition day in day out she enjoys life to the full and is always smiling and never complains please take the time to read Chloes story written my her mum Rebecca Davies Thanks for taking the time to visit my JustGiving page.y Rebecca Davies on Tuesday, November 3, 2009 at 9:32am ·
Chloes PAH story...to help raise awareness for the terrible condition that is Pulmonary Hypertension:
Chloe was 4 years old when what was to be the first symptom of Pulmonary Hypertension Showed its face. She had Passed out at nursery in August 07.
She found it very difficult to walk anywhere and always complained of being out of breath.
When she started school in the September 07 she couldnt even walk from the car to the school gates without crying with being short of breath and of pains in her leg.
We took her to the doctor who diagnosed Asthma, she was prescribed an inhaler but it made no difference...if anything she got worse and this is when the blue lips started.
They started maybe 3 times a week and as it was winter just assossiated it with the cold- the Doctors all listened to her heart and confirmed it 'sounded' fine.
Then on the 26th March 2008, we were collecting her from school and she looked like she had been sucking on a dark blue felt tip pen, her cheeks were also a deep purple- so we thought enough is enough and took her straight to the doctor. He sent her for an "MOT" at the Local hospital which involved an ECG....the ECG came back with a slight abnormality but we were told its probably nothing. so they Hooked her up to an Echocardiogram to get a better look at the heart.
What we and the consultant saw was harrowing to say the least -there was our daughters extremely tired and grossly enlarged heart barely able to function, fighting to keep her alive.
It would be this day 27.03.08 that we would be told the devasting news that our child had a rare and life threatening condition called Primary Pulmonary Hypertension.
Chloe was Transfered to the Brompton Hospital on her 5th Birthday 28th March where all our worse fears were confirmed.
We were told chloe wouldnt live to see her 13th birthday...and that was best case scenario.
To say we were devasted is an understatement- i completely lost control in the hospital- i felt like my heart had been torn out and stamped on. We found it very hard to stay strong for chloes sake. But had to!!
The year to follow first diagnosis was a traumatising and bumpy road with spending more time in hospital than out, in June 08 (just 3months after diagnosis) Great ormond street decided Chloe would have to have a hickman line fitted for 24hr Intravenous Epoprostenol Therapy.
Chloe can no longer do her favourite hobbies like swimming and has to have myself or Darren with her at all times to troubleshoot the pump that keeps her alive..
We have met the Transplant team this year (April) and it was an eye opening week of mixed emotions. We now hope that chloe will be a long time away from needing a Transplant, instead of the 2 years they have told us due to her aggressive and unpredictable condition.
Ideopathic Pulmonary Arterial Hypertension is a cruel disease that can be kept under control with early Diagnosis.
We are very lucky and extremely Grateful to have Chloe with us today, but it still haunts me that had she been diagnosed earlier and the signs were recognised that summer of her fainting then maybe it wouldnt have encrouched on her little life as much as it has.
Although Chloe is aware she is very sick, she does not fully know the full detrimental affect this disease will have on her life.
This Disease needs to be made more aware so that children and adults can be diagnosed early and before its too late.
Chloe is currently recieving massive Vasodilaters to ease the strain on her heart, these include Sildenafil, amlodipine, Bosentan and Intravenous Epoprostenol....
Thanx for reading. x
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