What follows is a very condensed version of the wild, stomach churning rollercoaster of the last 8 and a bit months.

After a few spells of feeling unwell, Sarah collapsed at our family home in July of 2018. Having visited hospital on several occasions for headaches, we assumed it would be something simple. Unfortunately we were wrong and the nightmare began.

She was taken to the neurology department at Charing Cross Hospital who found an orange-sized growth creating pressure deep in her brain. She was taken for a Craniotomy to remove and biopsy the tumor. After a reasonably successful first operation, there were several complications overnight, which then required further surgery. Unfortunately, the damage was done and at this point we were told to expect her not to last the weekend.

Sarah being Sarah (stubborn as ever!) wouldn't give in and battled back to us. Then the biopsy results shattered our worlds again. The tumour was Grade 4 Gliobastoma Multiforme, a highly aggressive, difficult to treat and lethal brain cancer.

Sarah was not well enough to withstand any chemo/radio so the decision was taken to discharge her into the community for palliative care. We were helpless, there was nothing to be done other than make whatever time left as happy and comfortable as possible. We were told at this point in August she would not last 2 months.

She was initially taken to Hayes Cottage Hospice where she stayed until late November 2018. The staff (In association with Harlington Hospice) took incredible care of our beautiful girl and her room became a home from home. We had Christmas in September, made friends with other patients and families, took her on walks, animal days and made the best we could.

Sarah carried on defying expectations, but in our hearts we knew if she was going to have one, her last real Christmas should be in the house she grew up in, her own home with her 2 cats. Harlington Hospice at Home kicked into action and were able to make it all happen. They built an incredible support network for us, an army of carers, nurses, physical therapists, physiological therapists, what we've needed- they've provided. To us they became a second family, shoulders were cried on, stories were shared and surprisingly the laughter and smiles the team brought to the family home each day meant everything to us in the darkest of times. The care, love and kindness they showed Sarah was incredible and we are thankful from the bottom of our hearts.

Sarah lasted 8 and a half months. She passed away on April 3rd 2019. She's been an incredible trooper, a fierce little warrior. Whilst she is gone and we are incredibly sad, she suffered and endured beyond anything you can imagine and we take some comfort that she is now at peace. GBM is a monster. Sarah was 32 years old.

Harlington Hospice were there for us everytime we needed them and we would love to show our appreciation by fundraising. If they can continue their vital work in the community and helping other families in a similar position to ours, that's a small legacy Sarah would be proud of.

I'll finish knowing Sarah would wish you all... love and light xxx

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