Rossendale Tri-athlon Sunday 28th May 2017

Hi - on Sunday 28th May 2017 I will be competing in the Rossendale Tri-Athlon again. I will be undertaking the swimming, my girlfriend Katie Plant doing the run and my Cousin Doni Clarke riding the bike.

In addition, this year I also have friends who have kindly volunteered to take part in an attempt to make this years event even more of a success than last year. The more people that are involved - the greater coverage this rare condition will receive and hopefully more funds raised.

Team 2 - Chris Spencer (swim), David McChesney (Bike), Beth McChesney (Irwin) run

Team 3 - Paul Guerin (swim), Ste Skillings (Bike), John Morton (Run)

Assembling Team 3 was difficult - and I'm not too hopeful they will complete - as it was scrapping of the barrel!!!!!!!!!!!!!!!!!!!!! hehehehe....

I'm conscious that I received lots of sponsorship last year and Id greatly appreciate if you could sponsor me again. The condition is extremely rare and all funds raised help to contribute towards research into this rare condition.

LETS BEAT THIS CRUEL DISEASE

As most people are aware - I suffer from a rare muscle wasting condition known as Limb Girdle Muscular Dystrophy (LGMD). This condition has affected 3 generations of my family. Both my Dad and Grandad died from this condition. My Grandad died aged 28 and more recently my father died in 2015 aged 55.

Muscular Dystrophy attacks the muscles within the body and over time the muscles in your body deteriorate and completely waste away.  The condition has started to affect me. The muscles in my legs are getting weaker and weaker. However; I'm determined not to let this condition defeat me. I am an extremely positive guy and want to raise awareness of the disease and I'm determined to do all I can in order to fight the condition.

To date their is still no cure for LGMD.

However recently there has been some exciting ground breaking research which has identified a drug which could potentially delay the affects of LGMD. This exciting break through represents a real possibility to one day finding a cure for this condition; however due to muscular dystrophy being so rare, funding is a major blockage in bringing this drug to the open market. There are still significant tests to be undertaken to ensure the drug is effective - but this has provided fresh hope.

The link to the break through drug (Resolaris) is below:

http://www.musculardystrophyuk.org/news/news/resolaris-receives-orphan-drug-status-for-the-treatment-of-lgmd

In order to raise funds to attempt to find a cure to this condition - I have set up a 'Spencer Family Fund' page with Muscular Dystrophy. This fund ensures that all the money raised goes into vital research and aims to speed up any developments for potential drugs / future cures. The page can be found on the muscular dystrophy website or by following the link below:

http://www.musculardystrophyuk.org/get-involved/family-funds/funds/spencers-family-fund

My objective is clear - I want to do all I can to proactively help in finding a cure for this condition.

With the help of family, friends and colleagues I will be undertaking a range of sponsored events, organising events such as trips to the e races, quiz nights etc etc. All funds raised will help to fund future research.

If you are able to help - please donate to this worthwhile cause. It means so much - Thanks for visiting my page.