Sean Spencer

Sean, Neil & Katie Rossendale Tri-Athlon 2018 page

Fundraising for Muscular Dystrophy UK
£1,860
raised of £1,500 target
by 54 supporters
Donations cannot currently be made to this page
Spencer Family Fund
Campaign by Muscular Dystrophy UK (RCN 205395 (England and Wales) - SC039445 (Scotland))
The Spencer Family Fund was set up by Sean Spencer who is affected by Limb Girdle muscular dystrophy to help raise funds for research into this condition and in memory of his father Roger who sadly passed away aged just 55.

Story

Rossendale Tri-Athlon - Sunday 27th May 2018

Hello All...

On Sunday 27th May 2018, I will again be taking part in the Rossendale Tri-Athlon. I will be entering as part of a team with my fiancée Katie Plant and my friend Neil Higham.

Last year we were joined by a group of friends who also entered the relay event. I'm really pleased that they have decided to do this again in 2018. In addition, I also have 4 friends who have also agreed to take part - however these guys are doing the Tri-Athlon solo. The entrants are:

Team 1: Sean Spencer, Katie Plant, Neil Higham

Team 2: Paul Guerin, Ste Skillings, Beth McChesney

Team 3: Chris Spencer, Jonny Jones, Lisa Spencer

Solo: Jason Smith

Solo: Simon Hurst

Solo: Daniel Hodgson

Solo: John Sanderson

I want to try and make this an annual event to help raise awareness and as much money as possible for Muscular Dystrophy. 

For those that don't know - I suffer from a rare condition called Limb Girdle Muscular Dystrophy. This condition has affected 3 generations of my family. Both my dad and Grandad died from this condition. My Grandad died aged 28 and more recently my father died aged 55. My Grandad would have turned 80 years old this year. 

There is still no cure to this condition, but I dream that one day there might be. The research that is ongoing is promising and they have found drugs which can delay the onset of this condition. However these drugs are still at clinical trial stages.

The funding available is extremely limited and this results in any progress being slow. By raising money this can help speed up any research and hopefully ensure a cure is found faster. 

In order to assist with this research - I have set up a Family Fund account with Muscular Dystrophy. This ensures any fundraising goes straight into vital research into finding a cure. The link to this is below:

http://www.musculardystrophyuk.org/get-involved/family-funds/funds/spencer-family-fund

My objective is clear - I want to do all I can to try to find a cure to this condition. 

With the continued support of family, friends and colleagues we can hopefully make a difference.

I want to say a massive thanks for your donations. Donating anything you can really does make a difference, and I really appreciate your ongoing support.

Sean xx

About the campaign

The Spencer Family Fund was set up by Sean Spencer who is affected by Limb Girdle muscular dystrophy to help raise funds for research into this condition and in memory of his father Roger who sadly passed away aged just 55.

About the charity

Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£1,860.00
+ £338.75 Gift Aid
Online donations
£1,860.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.