Amyloidosis Research

Shannon Hope is raising money for Royal Free Charity
In memory of Alison Hope
Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.

Story

My amazing mum, Alison Hope, sadly lost her life far too early due to complications related to Amyloidosis. She bravely fought the condition for 10 years before passing away two years ago. She is missed by all that knew and loved her every day. I can't change what has happened but I can try to do something in her memory to make things better for others with this condition. She would have wanted us to remember her as a fun, loving, outgoing and caring person and one of the things she enjoyed most was watching live music.

With this in mind we held a charity gig in her honour on Saturday 20th May 2023 in Bury St. Edmunds. We successfully managed to raise around £1000 at the event but know that many people who were unable to attend have expressed an interest in contributing to this fundraising further. This is why I have set up this page and hope that we can raise as much as possible for this very important cause in memory of my mum. 

Please feel free to share far and wide. Love you and miss you Mum, Shannon xoxo

Amyloidosis is a rare disease caused by damaging build up of abnormal protein fibres, called amyloid, within the tissues and organs. Amyloidosis can affect any part of the body and lead to life threatening organ failure. It causes the death of about one person in every thousand and there are about 6,000 cases in the UK at any time.Donations to the Amyloidosis Research Fund within the Royal Free Charity supports the research, development and patients of the UK NHS National Amyloidosis Centre (NAC) at the Royal Free Hospital. The Centre, established in 1999, is funded directly by NHS Specialised Services to provide diagnostic and management advisory services for all UK amyloidosis patients.Gift Aid supports the Royal Free Charity's full range of vital support services for staff and patients across the Royal Free London NHS Foundation Trust, as well as supporting research and innovation.

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Donation summary

Total
£1,562.08
+ £51.25 Gift Aid
Online
£1,562.08
Offline
£0.00

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