Hi! My name is Sharina. 

London Marathon is just around the corner and this will be my 2nd event in the span of 5 weeks. I recently did Outrun 24 event and managed to do 55 miles. 

My London Marathon spot is a ballot entry and NOT a charity entry. I don't need to raise funds for anybody but I am doing this to help raise funds for my little friend. Her name is Hasti. Hasti is 10 years old and dreams of being a chef and a dancer. Hasti however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). CdLS is characterised by reduced growth, global developmental delay, feeding problems, speech and language difficulties hearing problems and, in many cases, limb abnormalities, but it is rare for children with CdLS to become adults who live independent lives, often needing round the clock care for their entire lives. No cure or treatments exist for this terrible disease which occurs in just one in every 30,000 live births. 

Your donation go towards funding the research and development of a gene therapy for CdLS. It will help in the development of a cutting-edge gene therapy for CdLS so those living with CdLS, both now and in the future, can enjoy healthier lives.