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Caleb and Coby have Duchenne’s Muscular Dystrophy. This is a muscle wasting condition for which there is no cure. The boys are getting progressively weaker. It affects all muscles including those essential for heart and lung function.. However there is hope! There is lots of research going on out there but to keep it going they need funds. As the boys parents we feel we need to do our bit to help raise funds. WE ARE GOING TO WALK AROUND THE ISLE OF WIGHT!!
Anyone who knows us , and knows our fitness levels😫😫 knows what a challenge this will be . Action Duchenne work hard to fund research into finding a cure and there are potential treatments in the pipeline. To get these to our boys more research is needed and more funds! Please help us to help our boys and others like them 😘