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38 %
£387.50
raised of £1,000 target
by 49 supporters
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SIMON BUNDAY avatar
SIMON BUNDAY

SIMON's page

Fundraising for Cystinosis Foundation UK

38 %
£387.50
raised of £1,000 target
by 49 supporters
Donate
  • Event: SIMON BUNDAY's fundraising

Cystinosis Foundation UK

TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL

Charity Registration No. 1074885

Story

Thanks for taking the time to visit my JustGiving page.my name is simon bunday and i am raising money for drew axford -ewing who suffers with the rare metabolic disease cystinosis, this disease affects only 2000 people worldwide , little drew who is only 18 months old was diagnosed  with cystinosis when he was just 6 months old, this condition slowly  attacks the the organs in the body including the kidneys, liver, eyes and muscles and the brain  with no known cure.

drews mum alison is desperatly trying to raise funds to aid medical research into this rare condition, at present drew has to have frequent blood tests and visits to hospital and at presents has 37 different medicines every day and by the time he is 12 he will have to have a liver transplant ,

so it is my intention to raise some much needed funds for this little boy and the  cystinosis foundation uk, therefore i will be running 32 miles across dartmoor in the dartmoor discovery ultra marathon on june 4th this year.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

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