Thanks for taking the time to visit my JustGiving page.my name is simon bunday and i am raising money for drew axford -ewing who suffers with the rare metabolic disease cystinosis, this disease affects only 2000 people worldwide , little drew who is only 18 months old was diagnosed with cystinosis when he was just 6 months old, this condition slowly attacks the the organs in the body including the kidneys, liver, eyes and muscles and the brain with no known cure.
drews mum alison is desperatly trying to raise funds to aid medical research into this rare condition, at present drew has to have frequent blood tests and visits to hospital and at presents has 37 different medicines every day and by the time he is 12 he will have to have a liver transplant ,
so it is my intention to raise some much needed funds for this little boy and the cystinosis foundation uk, therefore i will be running 32 miles across dartmoor in the dartmoor discovery ultra marathon on june 4th this year.
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