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raised by 32 supporters
Simon Chadwick avatar
Simon Chadwick

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abseiling down the Spinnaker Tower in Portsmouth for Myositis UK because I support juvenile dermomyositis.

raised by 32 supporters
  • Event: The Big Abseil, 27 May 2013

Myositis UK

We raise funds for research to help improve treatments & diagnosis

Charity Registration No. 327791


I recently wrote and illustrated a children's book called Teddy-Bo's Feeling Tired that tells the story of what it's like for a child to be diagnosed and treated with juvenile dermomyositis. Everytime a child is now diagnosed with the condition they get a copy of the book and cuddly toy of Teddy-Bo, thanks to the work of the Myositis Support Group. 

Myositis affects both children and adults and there are many variants, but my personal experience has been largely with a girl in the village who was first diagnosed when she was at infant school. She's had a rough time of it since then, and was the inspiration behind the book. 

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