I am taking part in Ride Scorpion to raise valuable funds for SMA UK. 

Over the last 20 years, I have been fortunate to know Freddie Sheffield who has lived with SMA (Spinal Muscular Atrophy) all his life.  He is an intelligent, courageous young man, great company and forging an independent life for himself in London.  Through his eyes, I have seen some of the challenges that are faced by people like Freddie, dependent on carers and wheel chair access wherever they go.  This is a horrible genetic condition;  SMA UK has been set up to provide essential support to people with SMA and their families. 

Spinal Muscular Atrophy is a very rare, debilitating and incurable genetic neuromuscular condition, affecting approximately 1 in 10,000 newborns, or around 70 babies each year in the UK.  The diagnosis of Spinal Muscular Atrophy is usually a huge shock for most families who need time and support to understand the impact on their child’s life, and also on their family’s life. Through their phone line, website and outreach services SMA UK provides accurate information and support to families across the UK at a time when they need us the most.

 Find out more here - www.smauk.org.uk