Welcome to my fundraising page in aid of the AKU society and in support of my cousin Ann Kerrigan who has this rare genetic disease.  I think the best way to give you insight into the disease is to relate to you 'John's Story'....

Unfortunately my Cousin Ann died in August 2019 shortly after her 60th Birthday of her condition. She leaves behind a daughter and granddaughter and a brother. She was very brave and left her body to medical science. May she rest in peace.