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Ellie Dunstall avatar
Ellie Dunstall

Ellie & Martin SKYDIVE | Tory & Ange ZIPLINE For CF

We will be completing a skydive&zipline in August for Cystic Fibrosis Trust because we are fighting for a Life Unlimited.

324 %
£2,594.00
raised of £800 target
by 90 supporters
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Cystic Fibrosis Trust

We work throughout the UK with one mission to beat cystic fibrosis for good

Charity Registration No. 1079049 (England and Wales) & SC040196 (Scotland)

Story

In 1999, after multiple chest infections and stomach problems, my brother and I were diagnosed with Cystic Fibrosis. Both my parents experienced what our nurses would call a 'steep learning curve' after this life changing news. When a local paediatrician gave us our diagnosis, my parents were told that we could live into our teen years. However, specialist doctors at our regional centre (Newcastle RVI) were able to extend that expectancy to approximately 30 years. 

Cystic Fibrosis is caused by one faulty gene. This gene controls the movement of salt and water in and out of cells. To have CF, you need to have inherited a faulty copy of the gene from each parent. 1 in 25 of us carries this defect, usually unknowingly. If both parents carry a faulty gene, there is a 1 in 4 chance of each of their children having Cystic Fibrosis.

This condition causes the body to produce thick sticky mucus which mainly affects the lungs and digestive system. This leads to recurrent and severe chest infections, as well as a range of digestive issues. Additional complications include CF-related diabetes, bone disease and infertility.

Cystic Fibrosis affects over 10,000 people in the UK. No two CF patients are the same, not even siblings. As a result, treatment regimes vary drastically. Some treatments will apply to the majority, such as daily physiotherapy, antibiotics, and digestive enzymes with all fat bearing foods. While others will need the addition of various nebulisers, inhalers, insulin and regular 2-week courses of intravenous antibiotics (antibiotics given straight into the blood stream).

There is currently no cure.

Tory and I have been friends since reception, she's regularly seen the affects CF can have on day to day life. So who better to complete this challenge with me!? (As well as being daft enough). It also helps to have a 'fundraising queen' on my team!

Update:
Unfortunately Tory is unable to take part in the skydive due to medical reasons, however will be zip lining across Niagara Falls in early September!! Ange (Tory's mum) will also be zip lining with Tory to try and raise money and awareness for CF.

A massive thank you to Martin, who will now be skydiving with me in place of Tory!


With your help, the CF Trust will be able to:

Fund cutting-edge research. The more research, the more chance of a better quality of life, as well as increasing the average life expectancy.Increase standards of care. Personalising treatments to maximise benefits.Continue to support patients and their loved ones. Ultimately, to one day find a cure, living a Life Unlimited.

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