Sunday 9th August 26.

WE DID IT! 🥳

We finally took the leap for Ruban! What an amazing, thrilling but scary experience!

A huge thank you to everyone who donated to Ruban's charity! We exceeded our target and every penny will go towards helping Ruban stay on his feet.

Check out the gallery pictures of Mason and I before, during and after our skydive!

Another update! The skydive was cancelled again on 21st June due to Goskydive changing times at the last minute. Ruban had his bilateral knee surgery in July, so we couldn't reschedule it until he had a few weeks of recovery. We have finally re booked it for Sunday 9th August 2026. The weather is looking good for it to go ahead so hoping for no more unforseen cancellations from the skydive company! 🙏

Ruban's recovery has been tough for him but he's finally turned a corner. We hope to get him physio as soon as possible to get him back on his feet! 💪

Another update! Due to bad weather on 6th June 26, the skydive was cancelled. We have booked it for 21st June 26 so keeping everything crossed that it can go ahead now!

Thankyou to everyone who has donated so far. We are sooo thankful that you are all willing to help our legend Ruban. Sending everyone a massive hug 🫂 xx

Urgent update!

This has been rescheduled to 6th June 26 (weather permitting) due to Goskydive cancelling because of essential maintenance works at the airfield.

On 9th May 2026, Mason and I will be taking on one of the most terrifying yet meaningful challenges of our lives.

We will be jumping from 12,000ft in a skydive to raise money for a charity incredibly close to our hearts — Ruban’s Wish to Walk, supported through Tree of Hope.Together, we will fly high above the clouds before taking that leap, free falling for around 40 seconds before parachuting safely back down to the ground… all for our very own little legend, Ruban.

Ruban is my 13-year-old grandson and Mason’s younger brother. From the moment he entered the world, his journey has been anything but ordinary.

The day Ruban was born, doctors immediately noticed something wasn’t right with his eyes. At just two weeks old he was diagnosed with Peters Anomaly. He is blind in one eye and partially sighted in the other. As Ruban grew, it became clear he wasn’t reaching his milestones. His legs turned inwards, and he was unable to sit up or crawl independently. Then we received the heartbreaking news that Ruban had spasticity. This was later confirmed as four-limb dystonia and dyskinesia, meaning his brain struggles to send the correct signals to his muscles, leaving them tight, weak, and often uncontrollable.

At 10 months old, Ruban became critically unwell and struggled to breathe. He was diagnosed with dysphasia which leads to choking and severe chest infections. Ruban also began experiencing severe headaches, multiple times a day, which were so intense they caused him to pass out. An MRI scan revealed he had ACC (where the tissue connecting the two halves of the brain is partially missing) and Chiari malformation, where part of his brain extends into the spinal canal. He had surgery to remove the top vertebrae of his spine and brain surgery to relieve the pressure in his skull. This was partially successful but he continues to have episodes if he is unwell, upset or if he gets excited.

Ruban's parents took part in the groundbreaking 100,000 Genomes Project in 2019, which revealed Ruban has an extremely rare condition called Syndromic Microphthalmia Type 12. At the time, he was only the fourth person in the world known to have this condition, and the only one in the UK.

Despite everything, Ruban has spent his entire life fighting.He has undergone multiple surgeries on his eyes, brain, skull, and legs, and is now facing further operations on his knees and feet.

The reality is that NHS care alone cannot provide the level of ongoing therapy, equipment, and specialist support that Ruban needs.

We were once told Ruban may never walk. But through sheer determination, strength, and access to private therapies, which are funded through kind donations to his charity, he has access to weekly physio sessions and The Freddy Farmer Foundation. Due to having access to these therapies, Ruban has proven people wrong — he can now walk using a frame.

However, his journey doesn’t stop here. His condition is ongoing and complex, and with further surgeries ahead, he will need intensive rehabilitation and lifelong support to help him stay on his feet and continue progressing.

This is why we are fundraising. Ruban is so much more than his diagnoses.He is one of the most loving, caring, and funniest little boys you could ever meet. He lights up every room he enters, with a smile so contagious you can’t help but smile back. He’s a little prankster who loves making people laugh.He truly has a warrior’s heart, living with daily challenges and pain, yet always finding joy in between. Ruban shows us every day, that even when life is at its hardest, you can still come out the other side stronger.

And that is exactly why we are doing this skydive.We wish for him to walk and live as pain-free as possible.To walk hand in hand with us.To play in the park with his siblings and friends, instead of watching from the sidelines and to grow up with independence - all the little things we so often take for granted.So we’re taking a leap — quite literally — to help make those moments possible.

Every donation, no matter how small, will go towards the specialist therapies, equipment, and rehabilitation Ruban needs to keep moving forward.

Thank you so much for your support, your kindness, and for helping us give Ruban the chance he deserves 💛

Karen (nan) and Mason (big bro) X