Thanks for taking the time to visit my JustGiving page.

We are raising money to help towards the reasearch and development of treatments and cures for Marfans syndrome which is a severe life threatening disorder it is a hereditary heart condition that one of our closest friends has been suffering with her whole life it causes sudden cardiac death to happen suddenly and  at a young age and cause people to die or to have to undergo open heart surgery  this condition significantly lowers life expectency of sufferers so from an early age children with the condotion will grow up worrying about how long family members and themselves  have left. This condition also causes blindness, spinal curvature requiring surgery and lung disease. This is a cause very close to us as our best friend and most of her family have Marfans so please donate to us either in person or through this page and we will jump out of a plane for the cause. 

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