Skye's page

Christopher Wellesley is raising money for Skye Wellesley Foundation

Participants: Chris Wellesley,Jon Mellberg,Jon Wright,Harry Grist,Tom Anderson,Guy Anderson,Tony Eccles,Fraser Sheader, Matt Regan

Donations cannot currently be made to this page

Hever Castle Triathlon · 30 September 2012

In June 2008 Skye Wellesley, aged one, was diagnosed with Rett Syndrome. Not being aware of the existence of this condition at the time, the horrific days and weeks that followed we, her family, discovered what it means to us and to about 2,000 other families in the UK. Rett Syndrome is caused by a sporadic genetic mutation on the MECP2 gene located on the X chromosome. This microscopic change in the structure of chromosomal proteins has an overwhelming impact on the life of the 1 girl in 15,000 statistically around the world. Most obviously, Rett chronically slows these girls neuro-development, very few Rett girls will ever speak and only half of them will walk. Behind the physical incapacity, there are also additional problems as Rett girls are prone to scoliosis, difficulties with digestion, epilepsy and fits of extreme anxiety. We set up the charity to fund research into finding a cure for Rett. There has been very significant progress towards that goal over the last four years and I'm pleased to say that Professor Adrian Bird at Edinburgh University is at the forefront. Research can be very focused as the gene, MEPC2, that causes Rett was pinpointed ten years ago. Finding a cure for Rett would bring so much happiness to many girls who are prisoners within their own bodies, plus it will help to find a cure for other genetically related disorders. Thank you

Story

This is the big annual fundraiser for the Skye Wellesley Foundation, there is a team of 10 who are doing the Olympic distance triathlon at Hever Castle. There is a varied level of abilities on the team, some who will be disappointed not finishing under 2 hours 30 mins, other who will be relieved to get round in one piece. The funds raised will go directly towards finding a cure for Rett Syndrome, please be very generous, its a worthy cause helping these beautiful Rett girls break free from their broken bodies and live a normal life.

Help Christopher Wellesley

Sharing this cause with your network could help raise up to 5x more in donations. Select a platform to make it happen:

You can also help by sharing this link on:

Donation summary

Total
£13,582.00
+ £2,758.00 Gift Aid
Online
£13,582.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees