Since establishing Sophie Anne’s Fund in the spring of 2020, we have raised over $88,000 and directly impacted 130 patient visits. Funds are used to support resources like lodging for families who must travel for care, transportation, long-term housing for those receiving more intensive treatment and/or participating in clinical trials, and medication and laboratory services that are not covered by insurance.

A beneficiary of Sophie Anne’s Fund said it best, “what if someone you loved was diagnosed with something that currently had no cure? What if there was Help, but you couldn’t afford to get to it?”

Sophie Anne’s fund has been a lifeline to families who are desperately seeking treatment and research but may not otherwise have access to care.

We are so passionate about this rare disease because our daughter, Sophie Anne, was diagnosed in 2019 at age 7 and is now under the care of Dr. Torok and UPMC. We hope you choose to support Sophie Anne's Fund to help advance the research and treatment options for ALL Scleroderma patients around the world, including Sophie Anne.