I have registered with Endometriosis UK to walk 8km during the month of August to raise money for those with this incurable condition. On average, it takes 8 years for women to be diagnosed with endometriosis.

Endometriosis is a condition in which tissue, similar to the lining of the womb, starts to grow in other places, such as, the ovaries, fallopian tubes, bowel etc., which as you can imagine, causes excruciating pain. Endometriosis is classified into one of four stages: Minimal, Mild, Moderate and Severe, based upon the exact location, extent and depth. The only definitive way to diagnose endometriosis is by a laparoscopy - an operation in which a camera is inserted into the pelvis. The surgeon uses the camera to see the pelvic organs and look for any signs of endometriosis. If endometriosis is diagnosed, the endometriosis may be treated or removed.

Around 1 in 10 women are affected by this condition. However, many go un-diagnosed/mis-diagnosed for years at a time. I thought this was going to be the case for myself after suffering for years with both my periods and bowels, and spending days in different parts of a hospital in which I wasn't receiving any definitive answers. Luckily, I was able to sought private advice from a specialist at Spire Murrayfield Hospital on 26th June 2021 who explained possible signs of endometriosis were evident and I would need a laparoscopy straight away. The surgeon explained it may be a two-part procedure in which I may have to have one of my ovaries removed - it is a known fact that there is an association between endometriosis and fertility problems. 

I was diagnosed with Endometriosis on 15th July 2021. Endometriosis invaded my organs near my uterus, including areas such as, my pelvic side walls, bowel, urethra. This type of endometriosis can be known as deeply infiltrative endometriosis as it is found deep within the tissue or organ. This actually happens quite rarely, only 1-5% of those with endometriosis will experience this type. During my laparoscopy, my surgeon also removed my appendix as due to the pressure this was twisted, causing further pain. Fortunately, the endometriosis had not reached my ovaries yet and I have been able to keep both. However, it's very unlikely that this will be my last laparoscopy as there is no cure for endometriosis. 

I know 8km may not seem like much to some, however, as I have now been diagnosed with this life-long, chronic illness and I am now recovering from my operation, I thought it would be an amazing idea to be involved with Endometriosis UK to not only get back active, but to raise money for an incredible organisation! 

I understand not everyone can donate, but just reading further about Endometriosis will make more people aware of this chronic condition which affects so many lives. 

Thank you so much for taking the time to read my story and supporting an amazing cause.

Soph ♥

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