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21 %
£12,944
raised of £60,000 target
by 259 supporters
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Elaine Thornton avatar
Elaine Thornton

Raising funds for A Space 4 Jakey

Building a bedroom + bathroom + access to outside for Sullivan's Heroes because his disabilities mean we can no longer carry him

21 %
£12,944
raised of £60,000 target
by 259 supporters
Donate

Sullivan's Heroes

We provide grants, support and fundraising to adapt the homes of UK disabled children

Charity Registration No. 1163021

Story

Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds for vital home adaptations for a disabled child, to continue to care for their child at home, safely and with dignity

                                              MY STORY

 My name is Jakey and I am 6 years old. When I was a tiny baby I had a very serious accident and the hospital couldn't fix me. My Mummy wasn't able to look after me, so now I live with my forever Mummy and Daddy who love me very much, even when I'm cheeky (lots) but I'm not naughty. I have lots of brothers and sisters, nieces and nephews , I love it when they come to visit and I get to look after the babies, we have lots of 🤗🤗 and 😘 😘.I love meeting new people ( especially all the pretty ladies/nurses who I win over with my great big smile) I am told I have a wicked sense of humour and I laugh a lot, sometimes it hurts my tummy but it's a good hurt. I am lucky to have this amazing computer called an Eyegaze which I use by eye tracking .( with my good eye) I love playing games, learning and best of all painting pictures on it, Mummy has had some of paintings made into canvases, calendars and cards,  which I sell to raise funds.   I have holes in my brain, and because of this I now have Cerebral Palsy to the  highest level to all of my limbs (quadriplegic)  my wheelchair is my legs as I am unable to move or sit up independently and my head can be a bit floppy, I also have quadreplegic  Dystonia which means my limbs are very stiff and hurt lots, I suffer with Seizures, have no sight in my right eye and impaired sight in my left, I am unable to swallow so I`m fed by a tube into my tummy, my breathing wasn't great and I was given a Tracheostomy  2 1/2 years ago (wow that is a great little tube) I also have severe scoliosis and very very soon Mummy and Daddy will be taking me to the hospital to have magic rods inserted into my back (I must admit  I`m  a bit scared) but afterwards I should be straighter and not having so much pain, my hips are also dislocated so I will have to have them fixed soon too.  Now comes the bit when I ask for some help.  Due to all of the above I need to have a bedroom and bathroom on the ground floor I`m getting bigger and heavier to carry upstairs and Daddy isn't getting any younger (whoops don't tell him I said that) seriously once I have my operation which should be in Sept/October 2017 I wont be allowed to be lifted or carried I will have to be hoisted all the time ( Don't really like hoists😢). I will be going into a rehabilitation home/Hospice post operatively because I cant go home (I`m sad 😥).  Thankyou for reading my story and if you can help in anyway to help get me home I would be forever grateful  

 Thankyou to Sullivan's Hereos for accepting us 





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