At 22 weeks pregnant I was to find out that my baby boy would have spinabifida and the diagnosis wasn’t very hopeful, on top of being told he probably wouldn’t walk I was told he had no cerebellum in his brain and therefore wouldn’t even hold his own head up. Termination was encouraged often, but I decided to let fate decide and kept my baby boy.  My nana, too, had a little boy many years ago, Scott, whom sadly passed away aged just 1. So this really affected my entire family 

On  March 24th 2014, a hero was born, named Dexson. Dexson was born with spinabifida, which includes hydrocephalus (fluid of the brain) at aged just 2 days old he received major spinal surgery to return all nerve endings and close up the massive hole in his back. At 10 days old, after a sizeable build up of fluid in his brain, he had brain surgery to have a shunt fitted. 

Soon after the diagnosis came flooding in one by One, I thought Dexson wouldn’t have much of a life and it absolutely broke my heart. Spinabifida, hydrocephalus, neurogenic bladder, severe kidney reflux, conjoined kidneys, suspected scoliosis, tethered cord and hyper mobility, but throughout our journey the spinabifida association has been there whenever I need them. Giving advice, help and support, we would love to give back to them and raise funds so that everyone in our situation can benefit. I’d be lost without them, Jodie in particular has been a godsend 

Dexson is now almost 4 and as it’s his birthday a few days after the event, I thought I’d give this a go (time to get over my fear of height’s, especially towers OMG) Dexson is an amazing little boy.... HE WALKS 🎉 runs and even jumps, there’s no stopping him actually. He’s clever, he never stops yapping to be fair. He attends main stream nursery, he also recently has joined “the Friday night club” at our local community centre where he’s very popular especially with his big sister Maicey (p7) and all of her chums. He’s inspirational! He’s taught me so much, he absolutely Loves Life!

Unfortunately Dexson requires more surgery and this year will be having spinal surgery in Edinburgh to detether and once healed will be having a shunt revision where the re enter the brain and probably will be changing his shunt as it’s not draining as well as it should be. Undoubtedly We will be leaning on the Scottish spinabifida association throughout this difficult time, I’d love to raise a great total for them, on behalf of Dexson and my nanas son Scott...  every penny helps ❤️

So please, I’m asking anyone and everyone to donate whatever you can, We and the spinabifida association would be forever thankful 

Lots of love 

Sam, Maicey and Dexson xxx