Casimir Knight

SpinHarder for Spinraza

Fundraising for The SMA Trust
raised of €17,859 target
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The SMA Trust

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RCN 1097765
We fund research into SMA to help find a cure and treatments


We rode 1,022 miles, 1,645 kilometers - and climbed 17,859.65 meters (CHECK OUR TARGET OUT!!!) from Rome to Prague because.....SMA is a devastating neuromuscular condition that is the number one genetic killer of young children. After 20 years of looking for a treatment - called SPINRAZA - one has been found. It is approved for use in the US. Great news! But this year - 2017 - our challenge is to get it to patients in Europe. 

All the money raised will go directly into efforts to get treatment to European patients as quickly as possible. Please help us and give generously

About the charity

The SMA Trust

Verified by JustGiving

RCN 1097765
SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Donation summary

Total raised
+ €1,882.36 Gift Aid
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Offline donations

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