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103 %
€18,430
raised of €17,859.65 target
by 141 supporters
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Casimir Knight avatar
Casimir Knight

SpinHarder for Spinraza

We rode over a 1,000 miles from Rome to Prague for The SMA Trust because we want to get SMA patients medicines they need

103 %
€18,430
raised of €17,859.65 target
by 141 supporters
Donate

The SMA Trust

We fund research into SMA to help find a cure and treatments

Charity Registration No. 1097765

Story

We rode 1,022 miles, 1,645 kilometers - and climbed 17,859.65 meters (CHECK OUR TARGET OUT!!!) from Rome to Prague because.....SMA is a devastating neuromuscular condition that is the number one genetic killer of young children. After 20 years of looking for a treatment - called SPINRAZA - one has been found. It is approved for use in the US. Great news! But this year - 2017 - our challenge is to get it to patients in Europe. 

All the money raised will go directly into efforts to get treatment to European patients as quickly as possible. Please help us and give generously

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141
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