Story
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Earlier this year a group of Mum's at Gt George's School, Munich decided to set a challenge to get fit by running a team relay. None of us are runners, most of us are not as fit as we would like, but we all share a goal to raise awareness and funds for the children's hyperinsulinism charity,
Emilio is a kind, generous, funny, young boy who attends St George's School, Munich. He was born with a rare condition, known as hyperinsulinism. It is a life threatening illness if not diagnosed and treated quickly. He was diagnosed at 11 weeks old, by which time the disease had already affected his pancreas, and medical staff were unable to say if the disease had already affected his brain development.
Most cases are congenital but in Emilio's case this was not so, which has made it all the more difficult to treat him effectively, as he doesn't follow the rules. He has and will always be a test case for doctors to learn from. Emilio is monitored on a daily basis, to ensure he stays healthy and strong.
Simple everyday tasks are made more difficult by his condition. His fingertips are desensitised due to prick tests which make fine motor skills tricky. His medications have side effects such as excessive hair growth, water retention and stunted growth. All things which can make life as an 8 year old hard work. He will always be subject to unpleasant drugs being administered to keep him as healthy as possible.
Emilio is a regular in-patient at Great Ormond Street where he undergoes ongoing tests to manage his illness but also to give the team a chance to observe, monitor and develop new solutions, to help in the management of future children's care.
So finally, Cristina, Trish, Jo, Claire C, Claire G, Amanda, Natalie, Karen, Katherine, Anna,, Susann and Zoe, Lisa, and Rachel hope you will support us in this very personal challenge.
Every penny, cent, euro, pound donation can and will make a difference.
Thank you in advance.....
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