Peggie-Mae Rona Simpson, born 09/09/20 6lbs 13oz of pure perfection. Peggie-Mae was diagnosed with full Trisomy 13, 3 days after she was born. Trisomy 13 is a serious rare genetic disorder that is not curable, it’s caused by having an additional copy of chromosome 13. It’s a random malfunction and happens 1 in every 25,000 babies. Peggie-Mae had serious heart defects along with other health problems, but this did not stop her living the best life she could. We had no indications or probelms throughout pregnancy, so this was a huge blow to us. We were told our daughter had a life limiting condition and to prepare for the worst. We were determined to take our little girl home and care for her. We were discharged from neonatal after 9 long days, our new life began. Every day we woke we didn’t know if it would be her last day. We made sure we made the most of every single day cherishing every single moment. As well as “normal” baby things, We had to learn to pass a feeding tube, deal with seizure type episodes, resuscitation techniques, oxygen and other machine usage as well as decide on any medication. We made sure we cared for her in the best possible way and did everything we could to ensure she was happy and comfortable. On several occasions Peggie-Mae didn’t recover well from an episode and we saved her life using the tools and techniques we were given from our medical team. This spoke volumes of how much of a fighter Peggie-Mae was. Although  Peggie-Mae had a hard time with life due to her medical condition her huge bright personality shown through all of that. She defied all odds, she was no textbook T13 baby and made her own rules, she was one determined little girl. Though she was tiny and little, she was sassy and knew what she liked and wanted. On the 12/12/20 at 3 months 3 days old we heartbreakingly lost our baby girl, her body was tired and she had decided when she‘d had enough. We always said that we would do everything in our power to help save her, but we would respect when Peggie-Mae decided it was her time. We miss our darling girl terribly, she‘s left a huge gap in our family, the house is so very quiet but she is at peace and there is no more suffering. No parent should ever suffer the loss of a child, but they should never have to see their child go through a daily battle of survival. 

Peggie-Mae will be that gentle summer breeze, that little white feather and the brightest star up above. She’s our little butterfly. There are no words strong enough to say how proud of our little sweet P we are.

We would just like to say a huge thank you, to the neonatal unit for all their love and support during our time spent there. Another huge thank you to CHAS for ensuring we had support and care for our time at home. Also a big thank you to the nurses and drs from Royal Aberdeen’s sick children’s hospital who dealt with Peggie-Mae. You are all truly wonderful people.None of it would have been possible if they never believed in us. We want to raise as much money as possible for CHAS, not only now but going forward to ensure they keep going and help other families. 

None of us know how long we have, nothing is guaranteed. So please take from us, to cherish life and make the absolute most of everything. Love hard and don’t sweat the small stuff ❤️

Thank you,

All our love, the Simpson’s x