My name is Stephanie Vera-Klein and I have Ehler's Danlos Syndrome.  Ehler's Danlos Syndrome is a genetic connective tissue disorder that negatively impacts my joints and several of by body's systems.  There is currently no cure for this disorder.

 Living with a rare genetic condition is very difficult.  Because EDS is a rare genetic condition, that means it is very difficult to get diagnosed and subsequently very difficult to find doctor's who know how to treat the associated symptoms of EDS.  Join me in raising awareness and funds for the rare.  Every story shared and every dollar donated goes towards finding answers to this rare genetic condition.