Stephen's page

The Sandcastle Trust's Mission is to support families living with a rare genetic condition, to build lasting positive family memories and strengthen their family relationships. We increase public awareness of the needs and issues that families face when accessing social opportunities; signpost to sources of support and affect positive change through our work. Our Vision is a future where a diagnosis of a rare genetic condition will not be a barrier to experiencing everything that life has to offer - most importantly enjoying time together as a family. We are a small charity but a national one that is run solely by volunteers. We receive no government funding and every penny raised will go directly towards providing some much needed fun and respite for affected families.